Blog
Beat the heat: why proper storage of your Florinef matters
Summer is here, and along with the patio dinners and long evenings comes something many of us in the Addison's and adrenal insufficiency community don't think about enough: how the season affects our medication. If you take Florinef...
Beat the Heat: Hydration & Electrolytes Matter
Hot weather increases fluid and electrolyte loss through sweat. For people with primary adrenal insufficiency (Addison's disease), maintaining fluid balance is especially important because aldosterone deficiency affects the body's...
Advocating for a brighter future in adrenal care
How one patient’s struggle, persistence, and advocacy can illuminate systemic gaps in rare disease care and inspire meaningful change while reminding others that their voice matters. I was finally prescribed a higher dose of...
Aspect Biosystems: Bioprinted Adrenal Tissue Shows Promise
Vancouver-based Aspect Biosystems recently presented exciting preclinical data at ENDO 2025 demonstrating the potential of its "Bioprinted Tissue Therapeutics" for primary adrenal insufficiency. Researchers implanted bioprinted adrenal...
School Updates in British Columbia
Nursing Support Services has created modules that will support staff K-12 in learning how to support students with adrenal insufficiency with an estimated start date of September 2026. Documents and training videos for staff will include...
Alberta Pituitary Patient Society Event
In collaboration with our friends at the Alberta Pituitary Patient Society, we are putting together an event on Saturday, May 30, 2026, in person from 1:30 - 5 pm or virtually via Zoom at 3 pm. Location Program Room, Lois Hole...
Our first campaign to recognize International Adrenal Insufficiency Day!
For the just 665 members of the Canadian Addison Society, coming together for support, education, and advocacy is critical–but not easy given the size of Canada. This year, in recognition of International Adrenal Insufficiency Day on...
Living with Addison’s Disease: Lessons from Research and Real-Life Experiences
Drawing on recent research and real-life stories from patients, this article highlights not only the medical challenges of Addison’s disease but also the emotional, social, and psychological realities.
Medication Shortage: what you need to know
Medication shortages affect 1 in 4 Canadians — and for those of us with adrenal insufficiency, they can be life-threatening. Learn the four steps you can take right now to stay prepared, protect your health, and know what to do if your medication isn’t available.
My Body Was a Battleground: Finding Strength Through Community
“My body was a battleground.” That’s how I often describe the years it took to finally understand what was happening to me. Like so many others living with rare and chronic illnesses, my journey was long, confusing, and often...
Identity Theft: rediscovering who I am living with chronic illness
I used to be so many things. An indomitable CEO. A parent who never missed a game. A community leader. A friend who could always be counted on for a last-minute coffee or late-night chat. I was spontaneous, energetic, reliable, and proud...
Bioprinted adrenal implants: a promising step toward a functional cure for Addison’s disease
At the recent ENDO 2025 meeting in San Francisco, Aspect Biosystems unveiled remarkable preclinical results using Bioprinted Tissue Therapeutics (BTTs)—a new cell therapy approach with the potential to revolutionize treatment for primary...