“My body was a battleground.” That’s how I often describe the years it took to finally understand what was happening to me. Like so many others living with rare and chronic illnesses, my journey was long, confusing, and often overwhelming. But it’s also a story of resilience, community, and hope—a reminder that even in the hardest times, we are not alone.
A journey through diagnosis
My health story began with symptoms that didn’t make sense. I was exhausted, losing weight, struggling to keep up with daily life. Doctors searched for answers, and eventually I received diagnoses for Addison’s disease, Type 1 Diabetes, and Graves’ Disease—a combination known as Schmidt’s Syndrome.
On one hand, it was a relief to finally have a name for what was happening. On the other, it felt like a whole new mountain to climb. Managing one chronic illness is daunting. Managing three can feel like a full-time job. Like many of you reading this, I often wondered: How am I going to live with all of this?
Searching for support
At first, I found few resources. Addison’s disease, being rare, wasn’t widely understood. I often felt isolated, navigating a healthcare system that didn’t always have the answers.
But slowly, I began finding my way. I connected with the Canadian Addison Society, and everything shifted. Suddenly, I wasn’t alone. There were others who understood the medication adjustments, the fear of crisis, the exhaustion, and the emotional toll.
Community became my lifeline. It gave me knowledge, reassurance, and strength.
From patient to advocate
Throughout my life, I’ve always believed in helping others. I volunteered with our local Marine Search and Rescue unit and served as president of the Newcomers Club, building connections in my community.
So when the opportunity arose to contribute to the Canadian Addison Society, I felt called to step forward. I knew firsthand how important it was to have resources, education, and a sense of belonging. If I could help even one person feel less alone on their journey, it would be worth it.
Today, as President of the Society, I am committed to helping grow our support networks, expand resources, and advocate for better awareness of adrenal insufficiency.
Finding purpose in connection
Living with chronic illness is unpredictable. There are setbacks, hard days, and moments of deep frustration. But there are also victories—days when energy returns, when treatments work, when connections lift you up.
I’ve learned that while illness changes us, it does not define us. I am more than my diagnoses. I am a volunteer, a leader, a friend, and an advocate. And I believe each of us has the strength to move forward, even when our bodies feel like battlegrounds.
Tips for living with Addison’s disease and other chronic illnesses
If you or someone you love is navigating adrenal insufficiency or multiple chronic conditions, here are a few lessons I’ve learned along the way:
Find your community – Join support groups like those offered by the Canadian Addison Society. Knowing others who “get it” can ease isolation and provide comfort.
Educate yourself – Reliable information is power. Explore brochures, webinars, and resources to understand your condition and treatment options.
Advocate for your needs – Speak openly with your healthcare providers. Don’t hesitate to ask questions or push for clarity.
Involve your caregivers – Invite family or friends to learn alongside you. Caregiving becomes easier and more supportive when shared.
Celebrate small wins – Every day you manage your illness is an accomplishment worth recognizing.
Give back when you can – Volunteering or sharing your story not only helps others, it can bring meaning and purpose to your own journey.
You’re not alone
For anyone living with Addison’s disease or adrenal insufficiency: remember that while your journey is unique, you don’t have to walk it by yourself. The Canadian Addison Society is here with education, support, and community.
Together, we are stronger. Together, we can face the challenges of adrenal disease—and find hope, healing, and connection along the way.
By Debby Thomson, President, The Canadian Addison Society