This briefing summarizes findings from the Canadian Addison Society’s 2025 survey on member access to emergency medications. The results provide key insights into how individuals with Addison’s Disease are managing emergency preparedness and medication shortages.
Glucocorticoid (Hydrocortisone) Access
- 91% of respondents have a supply of glucocorticoids at home.
- However, 24% report difficulty in consistently accessing hydrocortisone tablets.
- Main issues: pharmacy stockouts, supply chain disruptions, and limited options for alternative dosages.
- Several members rely on importing or requesting compounded formulations.
Emergency Injection Kits
- 72% of respondents have an emergency injection kit (Solu-Cortef) available.
- Among those who do not have one:
- Top reasons include: lack of physician prescription, cost, and lack of awareness of need.
- Over 40% of members do not feel confident administering or receiving an emergency injection during an adrenal crisis.
Hospital Emergency Protocols
- Respondents expressed concern that many ER staff are unfamiliar with the protocol for treating adrenal crisis.
- Several members have experienced delays or incorrect treatment at hospitals.
- Members are carrying alert cards or letters to advocate for their own emergency care, but feel more standardized national guidance is needed.
Preparedness and Awareness
- While most members are aware of the importance of emergency preparedness:
- Only 58% regularly carry their emergency kit or wear a medical ID.
- Many are seeking more training, public awareness, and family/caregiver resources.
Medication Shortage Concerns
- High concern was reported regarding potential or actual shortages of both hydrocortisone and fludrocortisone.
- Members want:
- Timely communications on shortages
- Advocacy with Health Canada and pharmaceutical companies
- Guidance on what to do during shortages
Key Takeaways
- Access is good but fragile: Most members have what they need, but many face barriers in maintaining access and confidence in emergency readiness.
- Education and training are essential: Both for members and for health professionals.
Advocacy and communication are urgently needed regarding shortages and ER protocols.