Canadian Addison Society

Welcome to The Canadian Addison Society

Bulletin Board

Is there a Florinef (Fludrocortisone) shortage in Canada?
We have become aware of a few recent examples of patients being told by their retail pharmacy that they are temporarily unable to fill their prescriptions for Florinef (Fludrocortisone) due to a product shortage.
We have spoken with the Canadian source, Paladin Labs, about any possible shortages of Florinef that may currently exist. They advised they were out of stock for a very short time and that may have created a temporary supply chain issue with stock at some distributors and retail pharmacies. They also advised that as of May 2019 they were fully restocked. Pharmacies and distributors that may have been out are now able to restock as needed.
They also advised that there had been an error with the ordering information on their website that stated they would be out of stock until September 2019. This has been corrected. Some distributors and retail pharmacies may have seen the incorrect September date as the expected back in stock date. In such cases they may have inadvertently advised customers that the product is out of stock until September.
Paladin Labs has assured us they are fully stocked and Florinef is available.


Solu-Cortef shortage:
We have been alerted by ISMP Canada of an anticipated shortage of Solu-Cortef Act-O-Vials as carried in your emergency injection kit. We have been able to confirm this with Pfizer Canada.
Pfizer advises that a very temporary shortfall may occur in Canada between mid July to mid September depending on existing inventory at distributors and retail pharmacies. Pfizer also advises they hope the product will actually be replenished prior to the mid September timing.
The item of interest to most of us is the 100 mg 2mL Act-O-Vial, DIN# 00030600. If your emergency Act-O-Vials of Solu-Cortef are about to expire you may consider checking with your pharmacy. If your prescription refill may be delayed during this period, hold on to your expired Act-O-Vials until the fresh prescription refill is available.
Pfizer has assured us they will keep us informed as this situation unfolds over the next couple of months. Watch this Bulletin Board for updates.


Exciting EMS news to report…
We are extremely pleased to share the latest EMS news from Newfoundland & Labrador as of Sept 25, 2018. Following are the intros and links to media reports both print and video, all of which announce and/or discuss the implementation of the new potentially lifesaving EMS protocol for suspected adrenal crisis. We are very grateful to all that helped to make this new protocol a reality.


NTV Evening Newshour Early Edition - Tue, September 18, 2018
LIFE-SAVING MEDICATION TO BE ADMINISTERED BY PARAMEDICS: Paramedics in the province that now able to administer a shot that could save lives.
["Dr. Brian Metcalfe"]


NTV Evening Newshour - Tue, September 18, 2018
THE CARTER FILE: A milestone in our health care system today; paramedics will now be able to administer a life-saving drug.
["Dr. Brian Metcalfe"; "Dr. Carole Joyce"; "Paula Courage"]

“The Last Remaining Light”


We are pleased to participate in the global introduction of a short film “The Last Remaining Light”. A link to the film is located at the bottom of this article. The film was produced and directed by Martin Wallgren and co-produced by Addisonian and Team Addison bicyclist Martin Norrman (Martin Norrman also founded the non-profit Swedish Addison’s Association https://www.addisongruppen.se).

Following is a short intro to the film:

This is the most brilliant, touching and phenomenal movie for Addison's ever, letting the world know more about primary Addison's (it applies greatly to all forms of AI) along with breathtaking cinematography and narration. It is the story of the illness, fight and triumphs of co-producer and actor Martin Norrman, in coordination with producer and director Martin Wallgren. This movie was made with the goal of raising awareness of AI diseases, and we can't thank Martin and his team enough for their years of hard work and dedication to this important project, and for this awesome film.

While some people diagnosed with primary Addison's might not feel they can resume the level of activity Martin does in this amazing film, they will definitely see their own story in his.

PLEASE SHARE THIS MOVIE LINK with everyone you know. The more we can raise awareness of Addison's and other forms of AI, the more we will increase our diseases' funding, research, treatment options and maybe one day find a cure. This will be the best 15 minutes you will ever have with Addison’s. You can view this film in many languages by clicking the “CC” button at the top.

https://vimeo.com/martinwallgren/thelastremaininglight

Brochures & Holder Program

We are pleased to introduce our complimentary Brochures & Holder Program, an important element of our ongoing Awareness Campaign. If you are an AI patient and feel your Doctor(s) may be interested in contributing a little bit of counter space for our Brochures, please take this info sheet to your next appointment.

If you are a Healthcare provider and have a little bit of counter space for us in the patient area of your facility, please email to place an order. There is absolutely no charge of any sort, including refills of brochures. You may view the Brochure on our website by following this link:
http://www.addisonsociety.ca/pdfs/cas-brochure.pdf

Brochures & Holder ProgramSmall countertop footprint
12 cm W x 8.25 cm D
4-3/4" W x 3-1/4" D

Addison's Disease (Adrenal Insufficiency)

The number of people with Addison's Disease (Adrenal Insufficiency) varies with surveys in different countries depending on how these surveys are done, but in the United States, between 6 and 11 out of every 100,000 people will be diagnosed with this disease. The statistics are probably the same in Canada.

With this low prevalence of the disease, you may not have met anyone else who has this problem and it can be supportive to discuss your experience with others who have a similar problem.

We hope to help educate not only the medical society but also the public to aspects of the disease.

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Donate or pay membership dues using PayPal where you may use:
VISA - MASTERCARD - AMEX - DISCOVER
You do not require a PayPal account to use this payment option.
Donations over $15 made using either PayPal or cheque will receive a tax receipt directly from The Canadian Addison Society.

Donate Now With CanadaHelps.org

Donate Now to The Canadian Addison Society through CanadaHelps.org

You may choose to use CanadaHelps.org where you may make your donations (only) using your Credit Card. CanadaHelps.org will provide you with a tax receipt almost immediately.

MEMBERS PLEASE NOTE:
Membership cannot be paid through CanadaHelps.org.
For Membership dues payment please use PayPal or forward a cheque.

Tax receipts will be issued for donations of $15.00 or more when mailed to:
The Canadian Addison Society
c/o the Treasurer
2 Palace Arch Drive
Etobicoke, ON
M9A 2S1

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